3.

Selecting Domains and Items

The Eight Impact Domains + Core and Supplementary Items

Domain

Core Item

Supplementary Items

Knowledge & Skills

Patient, family and caregiver partners develop new or improve existing skills as a result of their involvement in patient engagement and partnering activities (P)

  • Staff gain new knowledge/skills as a result of their involvement in patient, family and caregiver engagement and partnering activities (P)

  • Patient, family and caregiver partners increase their knowledge of the health system as a result of their involvement in patient, family and caregiver engagement and partnering activities (P)

Confidence & Trust

Patient, family and caregiver partners and staff see increased value in the results of the work (PG)

  • Patient, family and caregiver engagement and partnering leads to greater trust among program providers and participants (P)

  • Staff feel more confident in participating in patient, family and caregiver engagement and partnering activities (P)

  • When patient, family and caregiver partners are on the team, the work produced has greater credibility among stakeholders (PG)

  • Patient , family and caregiver engagement and partnering leads to increased trust in the health system (HS)

Equity & Inclusivity

Patient, family and caregiver engagement and partnering contributes to more equitable programs because they are shaped by a diversity of perspectives (PG)

  • Patient, family and caregiver engagement and partnering contributes to more equitable decision-making within health systems (HS)

Priorities & Decisions

Patient engagement and partnering shapes the organization’s plans/priorities/decisions/policies (O)

  • Patient, family and caregiver partners are involved in decision-making (PG)

  • Patient, family and caregiver partners influence final decisions/outcomes (PG)

Effectiveness & Efficiency

Patient, family and caregiver engagement and partnering contributes to the design of effective programs because they reflect the priorities of those who will be using the programs (PG)

  • Patient, family and caregiver engagement and partnering contributes to cost-effective programming across the organization (PG)​

  • Patient, family and caregiver engagement and partnering supports the use of health care dollars in a fiscally responsible way (HS)

Patient Centredness

​​Patient, family and caregiver engagement and partnering makes the health system more aware of the patient journey and challenges in the system (HS)

  •  Patient, family and caregiver engagement and partnering facilitates the ability for organizations to provide client-centred services (O)

  • Patient, family and caregiver engagement and partnering contributes to programming that is more patient-centred (PG)

  • Engaging patient, family and caregiver partners increases the relevance of the program as it reflects the needs of patients/families/caregivers (PG)

  • Organizations are better able to offer the right services, in the right way at the right time (O)

Culture Change

Organization adopts a culture of co-designing and co-producing health care (O)

  • Staff and leadership gain a greater appreciation of the importance of patient, family and caregiver engagement and partnering (P)

  • Staff gain a better understanding and appreciation of the issue from the patient perspective (P)

  • Patient, family and caregiver partners are valued by the organization (O)

  • Patient, family and caregiver engagement and partnering is sustained beyond the support of an organizational champion (O)

  • Patient partners are embedded in all programs within the organization (O)

  • Patient engagement and partnering becomes embedded throughout the health system (HS)

  • Patient, family and caregiver engagement and partnering is valued and recognized by the health system (HS)​​​​

Patient Outcomes & Experience

Patient, family and caregiver engagement and partnering contributes to improved patient outcomes (HS)

  • Patient, family and caregiver engagement and partnering contributes to improved patient care (HS)

  • Patient, family and caregiver engagement and partnering contributes to improved patient satisfaction/experience (HS)

Key action steps and resources

Identify the domains and items of interest

  • Using your logic model, identify the domains and items that are of interest for your evaluation; complete the worksheet to outline these domains and items